IMI impact on patient involvement - Event
Start Date 07/10/2021About this event
For many years, patient involvement in research was restricted to participating in clinical studies and trials as research subjects. Today, it is widely recognised that patients can and should be much more involved in all aspects of research, including agenda setting, study design, communication, and ethics. At the same time, researchers are now well aware that patients bring unique knowledge and skills to projects which can help to improve the quality of research. At IMI, we seek to encourage patient involvement in all our activities, and many projects already have patients on board. We also involve patients as speakers and panellists in our events and encourage their participation in consultations.
This event is part of a series of live sessions that IMI is organising on IMI Impacts, where key actors explore the biggest challenges in their respective fields and demonstrate how IMI contributed to addressing them. During these sessions, we also focus on patients’ testimonies, as they are the ultimate beneficiaries of IMI’s funded research.
Furthermore, we want to engage IMI stakeholders in a broader discussion on IMI’s impact. With this initiative, we want to demonstrate the successful IMI model of radical collaboration.
Find out more about...
IMI & patient involvement in research
Outline of the event and presentations
Welcome and introduction Elli Karagianni, Scientific Project Officer, IMI - recording | presentation |
|
The challenge, the vision and the value Jan Geissler, PATVOCATES - recording | presentation |
|
How IMI projects have addressed the challenge & 'moved the needle' , Solutions from IMI projects
|
|
|
Q&A time
|
|
Closing remarks Magda Chlebus, Executive Director, Science Policy & Regulatory Affairs, EFPIA |
Meet the speakers
Founder and CEO |
Chair |
Patient participant |
Chair |
Carers Advisory Panel |
NVN (Dutch Kidney |
Executive Director, Science |
Moderated by:
Elli Karagianni Scientific Project Officer |